Knowledge and Data Management White Papers
Linkage of Patient Registries and Clinical Data Sets Without Patient Identifiers
Overview There are often tradeoffs when designing data collection tools - a process that is driven primarily by scarce resources. Where the Registry dataset seeks to obtain many cases it does so by relaxing the protocols that govern the process of data management and quality and by limiting the quantity of information collected. Where the Clinical dataset seeks to collect a great deal of quality information under managed processes it does so by limiting the total number of records it can populate. Each repository of information is designed and developed independently, each may share a common data schema, and each has its own strengths and weaknesses. This paper will outline a simple record-linkage between two mock datasets that do not contain a common primary-key identifier.
| Publisher | SAS Institute | File Format | |
|---|---|---|---|
| Date Published | March 2003 | ||
| Format | White Papers | ||
| Topics | |||
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